Dude . . . I'm the King of My Tubes. See 'em?
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| Just don't touch my tubes. They are mine, ya know, & I don't want you messing them up for me. |
Vent settings were decreased slightly since a very slight improvement was seen by the doctor today. With the help of five people to adjust tubes, lines, and more, Jeffrey spent almost two hours in a REAL chair today. Go Jeff!!! Mom said as soon as he got settled in the chair, the "conversations" began. "Clothes . . . shoes . . . store . . . Coke . . . goodbye . . . work . . ." The man has a plan, that's for sure. Sometimes you just look at him and it seems as if Jeff is quietly plotting his next move. He was completely exhausted after being up for the first time in over a MONTH, but that's okay.
My brother and I hung out for several hours tonight and talked some more about . . . store . . . Coke . . . and work. Seeing a trend here??? Being the awesome big sister that I am, I taught him how to pull the mask from my face and snap it back. I'm sure someone in the hospital will be a lucky recipient and appreciate me for that! :) We also did some random cognitive stuff (I touch my eye, he touches his, etc.). He's much more compliant and cordial than my students. That's for sure! I'm big about putting stuff on Jeff's lips. They've been SO dry and because of the vent, he's only allowed to use a minty cream provided with his mouth care stuff. After a few hours, his lips looked much better. Another crazy thing is that Jeffrey has a black eye - still don't know where it came from - and it seems to be darker and more swollen today. Poor guy. Looks like he's been in a fight, but I think he won!
One funny story is that I placed a pillow under Jeff's right arm this evening. Right after that, he moved the pillow and set it atop his arm. I said, "Oh, you want that on top of your arm. Okay." Less than a minute later, HE put the pillow under his arm. Rotten creep!
Before I close, I wanted to share that Mom received a really neat email today from the mother of one of the guys that lives in Jeff's group home. "S" and Jeffrey go back many years. They went to school together in Austin as young teenagers. The email said: "When I took S back to (the house) on Sunday afternoon, he stopped and checked Jeff's chair to see if he was there. Then he went to the dining table and checked. I don't give S enough credit so many times - he is more aware of his surroundings and people are more important to him than I imagined. Of course L (who works at the workshop where the residents of Jeff's home work) had told me on Friday that Jeff was still in the hospital. While so many family and friends are praying and watching Jeff's progress, his friends from the house and workshop are also missing him."
That message made me smile and warmed my heart almost as much as seeing and spending time with my brother did tonight. Thanks to all of you for continuing to love and pray for our amazing Jeffrey! We WILL get him out of this hospital eventually!